Add Krabbe disease to newborn screening

To:  PARLIAMENT~Ottawa~

What if you could save a life of a child just by adding a test to the already tested for genetic diseases at birth (newborn screening).

This petition is to add Krabbe disease (globoid cell leukodystroy) to the list of genetic disease already tested for at birth (newborn screening).

Krabbe disease (globoid cell leukodystroy) is a terminal disease with a life expencancy of 8-16 months, with 80% being babies most children do not make it to 2 years. There is a treatment now for Krabbe disease and this treatment has been successful in several Krabbe babies, this treatment gives our children hope for a future. However, only if diagnosed prior to symptoms can this treatment be successful. We must test our babies at birth so no other babies will have to die from Krabbe disease.

We are sending these signatures to the Provincial Government/Provincial Health Care system as well as the federal Government.

Sincerely,

The Undersigned

The Add Krabbe disease to newborn screening Petition to PARLIAMENT~Ottawa~ was created by and written by Corinne Arthurs (barthun628@rogers.com).  This petition is hosted here at www.PetitionOnline.com as a public service. There is no endorsement of this petition, express or implied, by Artifice, Inc. or our sponsors. For technical support please use our simple Petition Help form.

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