National Leiomyosarcoma Awareness Day

  • Author:
    n/a
  • Send To:
    President & Congress of the United States
  • Sponsored By:
    Supporters of the Princess Leora Project
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To the President & Congress of the United States;

We are requesting a Presidential Proclamation that April 26th be forever known as National Leiomyosarcoma Awareness Day, to attempt to give voice to an extremely rare and aggressive cancer, so that we may find a cure.

Our mission is to bring natioanal, and even worldwide attention to the importance of funding research of lesser known cancers namely Leiomyosarcoma, a very rare, aggressive and cureless cancer. We strive to bring attention through vigorous and creative fundraising via every possible media outlet, and by reaching out to all families affected, and providing personalized assistance to fit their needs. A portion of all proceeds will also be allotted to likeminded organizations which already exist, and help the community in similar ways.

Who we are-
We are the friends and family members of Leora Lynn Woodsmall (my daughter), a fifteen year old girl who was struck and killed by a cruel disease called Leiomyosarcoma. Leora is yet another casualty of another war in which we are under-funded, under-manned and under-recognized. We who love her and miss her will not rest until all other sufferers of LMS and other rarely heard of diseases have a chance to live. My daughter's cancer was so aggressive that it killed her in only five short months. She died an agonizing death on April 26th, 2003.

What is Leiomyosarcoma?-
It is an extremely rare and aggressive cancer that constitutes about four in every million cancer cases. Leiomyosarcoma, also called LMS, is an unusual cancer that usually strikes people who are middle-aged or older. However, in recent years we are finding the victims are getting younger.
LMS affects the soft tissues of the body. Attaching itself to blood vessels, it spreads through the blood stream, affecting other areas such as the liver, lungs, and other soft tissue areas of the body.
Surgery is the first plan of action for this cancer, due to the resistance it has to chemotherapy and radiation. Frequently, however, many surgeries are needed due to the aggressive nature of the disease. Tumors tend to grow large and fast.
There is no cure at the present time for LMS, and remission is difficult to attain. CT scans are needed for the patients lifetime, because this cancer can resurface any time in any part of the body.
Because LMS is so rare, most doctors have never seen it, and most of the public has never even heard of it. There are a handful of specialists in just a few teaching hospitals around the country. As a result, little funding is given to researching this cancer to try and find a cure. Only those of us who have looked this disease in the face know of its power and devastation.

Why help our cause?-
In our lifetime, we have seen breast cancer go from a horrible and cureless disease to a horrible but manageable, mostly curable disease. The only reason this has become so is because the disease was so prevalent, killing our mothers, daughters, sisters, wives and girl friends on such a frequent occasion that a cure was an absolute must. The call was heard by many voices, and people from all walks of life gave their time and money to help. Research was funded, and a cure was found. Now anyone can passively donate to Breast Cancer research by simply buying a pink pen or a pack of toilet paper that shows a pink ribbon.
That is the miracle. Millions of women will now live through the generosity of millions of others who heard their cries. They now have a whole MONTH dedicated to their cause.
We are only asking for ONE DAY.
The story of Leiomyosarcoma is very different. Our voice is so small that no one can hear it. With only hundreds of people diagnosed, most people have never heard of it. Our mothers, daughters, sisters, wives and girlfriends are dying. So are our fathers, sons, brothers, and husbands. They may be fewer, but the disease is no less vicious and cruel. The tumors grow large and fast, and with a long-term survival rate of less than 25\%, we are desperate to find a cure.
Although only hundreds have this cancer, the people who care for these victims are thousands strong. But we still need more voices in order to be heard.
Without more people to raise awareness and donate money for research, LMS will remain an unheard of cancer, with the only people who know it being the people who die from it, or the ones who cared for someone who did.

Thank you for your consideration in proclaiming April 26th every year National Leiomyosarcoma Awareness Day, in memory of all those we have lost and will lose to this cancer.

10910 Signatures

  • Archie C
    • In honor of LMS fighter
    • me
  • Sharynne T
    • In honor of LMS fighter
    • Sheila Voll
  • Desiree G
    • Comments
    • I have seen my aunt, who is like a mom to me, go through this cancer many times. Most recently, her 4th time, the tumor covers most of her femur and if the radiation can not shrink it she might loose her leg. It will be great to get more awareness for this horrible disease.
    • In honor of LMS fighter
    • Cindy Gurk
  • Brian R
    • Comments
    • please help
    • In memory of
    • friends
    • In honor of LMS fighter
    • Jack K.
  • Robyn P
    • In honor of LMS fighter
    • My Aunt Cindy Gurk
  • Bruce Burrell J
    • In honor of LMS fighter
    • Cindy Gurk
  • John S
  • Angela P
    • In honor of LMS fighter
    • Cindy Gurk
  • Marlene V
  • Mary Beth G
    • In memory of
    • Martha Gomez
  • james l
  • angela s. l
  • Vern H
  • Maureen Ann H
  • Michelle C
    • In honor of LMS fighter
    • Kathleen Bush
  • Jonathan L
    • In honor of LMS fighter
    • Aunt Cindy
  • Anita N J
    • In memory of
    • Thomas Morgan
  • Fernando A
    • In honor of LMS fighter
    • Daisy Rivera-Alicea
  • Juanita L
  • tracy b
    • In honor of LMS fighter
    • cindy
  • Daniel
    • In memory of
    • Thomas Morgan
  • James F
  • evelyn p
    • In honor of LMS fighter
    • cindy gurk
  • Angela H
  • Laura A
  • Linda G
    • In honor of LMS fighter
    • Linda Grossman
  • Julie R
    • In honor of LMS fighter
    • Linda Grossman
  • Sherry L
    • In honor of LMS fighter
    • Linda Grossman
  • Ed A
    • Comments
    • We love you very very much!
    • In honor of LMS fighter
    • Linda Grossman
  • Ulku &John G
    • In honor of LMS fighter
    • Linda Grossman
  • Philip
    • Comments
    • Must find way to help
  • Lisa W
    • Comments
    • Keep fighting Shannon! We love you!!
    • In honor of LMS fighter
    • Shannon J. McCall, MD
  • Darlene M. B
    • Comments
    • This cancer has hit our family. Awarness and more research must be done!
    • In honor of LMS fighter
    • Linda Grossman
  • Howard G
    • Comments
    • My wife is battling this deadly cancer and has grandchildren she'd like to see as they grow up..
    • In honor of LMS fighter
    • Linda Grossman
  • Leslie R
    • Comments
    • I am currently standing by the sides of both of my parents who are bravely and courageously fighting Ovarian Cancer and Lymphoma. Please help to fund the fight against all cancer. Today we fight Leiomyosarcoma!
  • Jessica H
  • Rene B
  • Pam T
    • Comments
    • My dear friend is battling this awful disease. We have to have many more years of together time!!
    • In honor of LMS fighter
    • Linda Grossman
  • Molli H
  • Stephen G
    • Comments
    • a very worth cause
    • In memory of
    • В
    • In honor of LMS fighter
    • Linda Grossman
  • John M B
    • Comments
    • More research funding is definitely needed now!!
    • In honor of LMS fighter
    • Linda Grossman
  • Richard L. P
    • In honor of LMS fighter
    • Linda Grossman
  • Mary Jane V
    • In honor of LMS fighter
    • Linda G
  • Deborah J. S
    • In honor of LMS fighter
    • Linda Grossman
  • Julia J B
    • Comments
    • Hopefully help will come
    • In honor of LMS fighter
    • Linda Grossman
  • Geraldine R. B
    • In honor of LMS fighter
    • Linda Grossman
  • Rosalie A
    • In honor of LMS fighter
    • Linda Grossman
  • judith c
    • In honor of LMS fighter
    • Linda G
  • Bonnie S
  • Tulin
    • In honor of LMS fighter
    • Linda Grossman