Petition to invest in Congenital Heart Defect Research

  • Author:
    n/a
  • Send To:
    U.S. Congress
  • Sponsored By:
    Kylie's Heart
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My daughter was born with a Congenital Heart Defect. She needed intervention for her heart. She has Pulmonary Stenosis and Atrial Septal Defect. Her condition doesn't require many hospital stays or surgeries but for other children they have to go through many stays and surgeries. In the U.S nearly twice as many children die each year from congenital heart defects than all forms of childhood cancers combined, yet, funding for pediatric cancer research is 5 times higher than for congenital heart defects. Why is this? Please sign the petition to invest in Congenital Heart Defect Research to find the root causes of congenital heart defects, and to improve the care and treatment of children born with these defects to enable them to lead healthy and meaningful lives. With the pushing of medical research cures can be found. Thank you for listening!

Facts About Congenital Heart Defects:

~* Congenital heart defects are the #1 birth defect in the U.S

~* It is estimated by the American Heart Association that nearly 1.2 million Americans are living today with a congenital heart defect, some of them don't know it until it is to late.

~* An estimated, on average, 1 in every 100 babies are born with a congenital heart defect (In comparison to Down Syndrome, 1 in every 900)

~* In the U.S nearly twice as many children die each year from congenital heart defects than all forms of childhood cancers combined, yet, funding for pediatric cancer research is 5 times high than for congenital heart defects.

~* Congenital heart defects are the #1 cause of birth defect related infant deaths.

~* Of the children sticken with Congenital heart defects, 1 in 10 have fatal birth defects.

~* Currently, there is no known cause, cure or prevention of congenital heart defects.

~* On average, 40,000 babies are born each year with a congenital heart defect.

~* Currently, there are over 35 known types of CHD.

1322 Signatures

  • Katie Busch
    • Address; Zip Code
    • 1624 Cotton Street Reading, PA 19606
  • Justin Busch
    • Address; Zip Code
    • 1624 Cotton Street Reading, PA 19606
  • Suzy Cassel-Yanez
    • Address; Zip Code
    • 22606 pico st, Grand Terrace CA 92313
  • Michelle Tierney
    • Comments
    • Son Ryan- TGA/ASD OHS @ 4 days to repair
    • Address; Zip Code
    • 22 Adams Rd. Grafton, MA 01519
  • Deloris Prothro
    • Comments
    • My daughter passed awayed. She was born with CHD.
    • Address; Zip Code
    • 220 Paul Jordan Rd. Natchitoches, LA 71457
  • Donna Reynolds
  • Trudy Weller
    • Address; Zip Code
    • Vail, Az 85641
  • Donna Reynolds
    • Address; Zip Code
    • Muscatine,Iowa
  • Melissa Piccolo
    • Comments
    • I also have a child with 3congential heart defects
  • Melissa Piccolo
    • Comments
    • I also have a child with 3congential heart defects
  • Raquel Rios
    • Comments
    • My son was born with complex cyanotic congenital heart disease composed of single ventricle, pulmonary stenosis, A.S.D., leaky mitrial valve, transposistion of the greater arteries, and T.A.P.V.R. below the diaphram. He was diagnosed after several siezures caused by a lack of oxygen. I am very disappointed by the lack of research in this matter.
    • Address; Zip Code
    • Tx
  • Mary Miller
    • Address; Zip Code
    • 9405 NW 15th Avenue Vancouver, WA 98685
  • Dana MacLean
  • Kateena brooks
    • Comments
    • Our son Daniel lee was born with Hypoplastic left heart syndrome, it is a very serious heart defect he had a half of a heart. We miss him so much please do this in memory of the children that loss their lives to CHD and those that are still battling CHD. We love and miss you Daniel lee, www.babydaniel.net or www.danielbrooks.net Daniel went to heaven at six months old
    • Address; Zip Code
    • 43 Wheeler street Fort leonardwood, MO. 65473
  • Kevin McArthur
    • Address; Zip Code
    • San Antonio, TX
  • Kelly Myron
  • LuAnn Buck
  • Jo Rossman
    • Comments
    • This is important to me - my son has CHD!
    • Address; Zip Code
    • 399 B Beach Avenue Rochester, NY 14612
  • Bekki Williams
    • Address; Zip Code
    • 83854
  • Jennifer Erb
    • Address; Zip Code
    • 18016 Moss Forest Houston, TX 77090
  • christine damelio
  • Karin Coulter
    • Comments
    • My child was born with a congenital heart defect called Tetralogy of Fallot. He was diagnosed at two days of age, in heart failure at two weeks of age and underwent his first open heart surgery at three months of age. We knew nothing about CHDs which is common among most people. Research and awareness will help our children as well as the children of the future.
    • Address; Zip Code
    • 5629 Barineau Lane; Knoxville, TN 37920
  • Kristin Rothfuss
    • Comments
    • My daugter has 3 heart defects so I can relate to this.
    • Address; Zip Code
    • 624 Castle Crest Dr Mira Loma, Ca 91752
  • Rebecca S, Hurley
    • Comments
    • I have three children with CHD.
  • james damelio
    • Comments
    • we.can,t get life.ins. for hear in the state of ohio.
    • Address; Zip Code
    • 12 s. davis s.t girard ohio
  • Marianna Barbowski
    • Comments
    • mom to Calista, 6, PAPVC
    • Address; Zip Code
    • 50 Edinburgh Drive, Bedford, NH 03110
  • Adam Barbowski
    • Comments
    • dad to Calista, 6, PAPVC. We need attention given to CHD. Thank goodness my daughter was diagnosed at the age of 6 by accident. She switched doctors because of a move we made. Her prior doctor never heard the murmur. Her situation was caught and can be repaired thanks to the advancement of medical technology. We need more awareness with respect to CHD's!!!!
    • Address; Zip Code
    • 50 Edinburgh Drive, Bedford, NH 03110
  • Rachel Harris
    • Comments
    • My daughter died from a heart problem
    • Address; Zip Code
    • 107 Lamar Drive Bonaire GA 31005
  • Jeanette
    • Comments
    • I have a heart defect, surgery wasn't availble untIL I was older, help us to stay alive
  • christina damelio
    • Address; Zip Code
    • 2003 E. Midlothian Blvd. Youngstown, Ohio 44502
  • colleen ramirez
    • Comments
    • I have 2 CHD kids and i want more answers i want to know if mold caused these deffects
    • Address; Zip Code
    • 428 w jessup st brighton co 80601
  • Kellie Baker
  • Roberto Ramirez
    • Comments
    • I have 2 kids with CHD
  • heather lowry
    • Address; Zip Code
    • 20521 toluca ave torrance ca 90503
  • Georgette Cestaro
    • Comments
    • please help our CHD babies have a fighting chance
    • Address; Zip Code
    • 11554
  • Georgette Cestaro
    • Comments
    • My son was born with a large VSD and sub-aortic stenosis/membrane. He was very sick until his open heart surgery. Please help CHD babies have a fighting chance.
    • Address; Zip Code
    • Long Island, N.Y. 11554
  • HELEN RODITIS
    • Comments
    • MOTHER OF CHILD WITH CHD
    • Address; Zip Code
    • 649 DIANNE ST. SEAFORD , NY 11783
  • MRS. DARLA MICCO
    • Comments
    • MY NIECE HAS THIS DEFECT AND I THINK THERE SHOULD BE MORE DONE FOR THESE KIDS.
    • Address; Zip Code
    • YOUNGSTOWN, OHIO
  • Cheri Roe
    • Comments
    • This issue is too vital to be unrecognized and underfunded in the areas of research and awareness.
    • Address; Zip Code
    • 102 Mockingbird Lane, Clute, Texas, 77531
  • Jennifer Crain
    • Address; Zip Code
    • 77346
  • Karen Morales
    • Comments
    • son with HLHS
    • Address; Zip Code
    • SC
  • Melinda Ellis
    • Address; Zip Code
    • 44412
  • Terri Cove
    • Comments
    • My 5 year old daughter has undergone 3 open-heart surgeries so far for her congenital heart defect. Currently she has to undergo open-heart surgeries every 5-7 years. Please help fund research so that she and other children like her do not need to continue to have these surgeries. We hope and pray she will make it through each of these surgeries until research and technology give us and alternative choice.
  • Laurel Kistulentz
  • kelly randazzo
  • stacey novick
  • Michelle Jolley
    • Address; Zip Code
    • 1950-201 Lavington Court Rock Hill SC 29732
  • Stephanie Harper
    • Address; Zip Code
    • 757 Robeline Provencal Rd. Lot 14 Robeline, LA 71469
  • Debra Gentile-Brennan
  • Melinda Parent