Immediate access to Iplex for all ALS patients

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    Insmed Corporation and Tercica
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Iplex was originally intended for the treatment of children suffering from hormonal growth problems but also offered great benefit to people suffering from ALS (a dreadful, terminal, neurodegenerative disease to which no cure has been found so far), showing improvements in their conditions. Iplex has even been given to babies and has shown great tolerability and few side effects.

Due to business and patent considerations, Iplex, a medication consisting of the growth hormone IGF-1 and binding proteins, has been taken off the market in the United States and is thus no longer available to ALS patients. The medication supposed to replace Iplex, Increlex, does not contain the binding proteins and has not shown the benefit that Iplex provided to patients.

One and a half years ago, Italian ALS patients sued and were granted expanded access to Iplex. They are being supported by the Italian government which is financing this program, providing millions of Euros each year for their patients medication.

We, ALS patients from the United States of America and from European countries such as Sweden and Germany, demand equal access to Iplex, the only medication that has shown benefit so far. We despise the fact that ALS patients across the world are being kept exempt from a medication that might prolong their lives.

Please help us fight for your and our loved ones lives and sign this petition.

1645 Signatures

  • David De Rosa
    • Comments
    • IT is already FDA approved. Why aren't all ALS patients given a chance of hope?
  • Edward W. Esparza
    • Comments
    • ALS patients are suffering due to a patent dispute - Genetech & Tercica have blocked Iplex availability for ALS while waiting to see if Myotrophan/Increlex would be successful in the clinical trial for ALS. The trial failed -- so if they have a moral and ethical conscience - they MUST now allow Iplex to be available for all ALS patients (Insmed has to pay these giant pharmas a percentage of all Iplex sales). Iplex is safe, it is FDA approved for Small Growth Stature. Iplex has FDA orphan drug status for Myotonic dystrophy. It is in Clinical trials for Myotonic Dystrophy -reportedly going very well. Ben Byer, one of the bravest ALS warriors, and other ALS patients that tried Iplex had measurable improvements in a very short time - before it was cruelly taken from them (see Indestructiblefilm.com
  • Joe Davis
  • steve tieman
  • Enrique Domingo Cervera
  • Andrea Reimers
    • Comments
    • Corporate greed is costing us our lives, release this medication and give us the same consideration the Italians enjoy immediately!!
  • James Reimers
    • Comments
    • Please help me prolong my life. I suffer from ALS, and ask for the same rights to live that the Italians currently enjoy.
  • Trisha M. Levine
  • beth rutledge
  • Phillip J Thompson
    • Comments
    • Time is short for those of us living with ALS
  • John Citron
  • Lee Montgomery
    • Comments
    • Please allow ALS Trials with PALS.
  • francisco marin
  • Bob Carter
    • Comments
    • Please help
  • NANCY MAGNO
  • Ned Glowinski
  • Peter Colichidas
    • Comments
    • I am an ALS patient
  • Ned Vukovic
    • Comments
    • The late Ben Byer tried everything and Iplex had by far the most positive effect.
  • Bob Augello
    • Comments
    • This is how the universe works.
  • Krista Wortman
    • Comments
    • please help my father, who has ALS
  • PATRICIA JONES
    • Comments
    • NEED IPLEX NOW.
  • MaryAnn Bennett
    • Comments
    • wife of PALS
  • Judith Olson
    • Comments
    • Everyone suffering from ALS should have immediate access to IPLEX. Please help my friend, Pat, and all the other people who could benefit from this medicine. Everyone deserves a chance to live. Don't destroy the remaining supplies that people are dying to try. To some it is their only hope. If your time in limited on earth, they only stand to gain from the existing supply.
  • chris perdulovski
  • Peter Bakker
    • Comments
    • Come on people, what would you do if you were dying
  • Jeannie Harrison
    • Comments
    • How many more people have to die because of ALS? How would you feel if you had a loved one with a terminal disease which currently has no cure? If you were any decent human being you would allow ALL of us to try Iplex no questions asked. Please please please help us, at least give us a try.
  • Rennie Van Rensburg
    • Comments
    • A healthy man has about a 1000 dreams and a 1000 wishes. A man without health has about 1 dream...
  • Anna de Montignie
  • Aisha Zaghlan
    • Comments
    • For Each Disease there is a cure
  • Livio Vezzi
  • Gordon Brown
    • Comments
    • I have ALS and I think I am being descriminated against by not being able to get IPLEX.
  • Mikael Torlof
    • Comments
    • Put Iplex back on the market!
  • Virginia Meek
  • Peter D. Kopecko
  • Christine O'Neil
    • Comments
    • Please give us the chance to fight this disease and live
  • Sharon Caruthers
    • Comments
    • ALS patient
  • Sagit Drishner
  • Hanns Riederer
  • Donald D. Jimerson
    • Comments
    • I have ALS and an 8 year old son. Please help!
  • Cindy Jimerson
    • Comments
    • Insmed and Tercica executives, ALS does not discriminate and any of your loved ones could be next. I'm sure you would make Iplex available to your families. Please make it available to my husband and all pALS worldwide.
  • renzo celani
  • Charles H. Clark
  • rk Kapnick
    • Comments
    • For Neph and her mom.
  • Daivd LaRue
  • EugeneAsselstine
  • Josй Aurioles Rodrнguez
  • Lynn Goldsmith
  • Tracy Blair
  • Keith Forrest
  • Christina Suhr
    • Comments
    • Love you uncle Don