Reflex Sympathetic Dystrophy Syndrome Education and Research Program Act
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State Representatives
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This petition is to demonstrate the support from patients, caretakers, healthcare professionals, and many others, all over the country. We are asking for your help. Please help us move forward in the progress of education and research needed to fix the broken system when it comes to the knowledge, diagnostic protocol, and treatment options available. The Reflex Sympathetic Dystrophy Syndrome Education and Research Program Act is being presented in multiple states and we are counting on your support to make it happen for the citizens of our state.
In both the medical community and general society it is agreed that there are approximately 6 million people in the United States with RSD, however from recent medical data this is likely a large underestimate. The loss of production to the economy by people afflicted with this is substantial and it can happen to anyone, at any time, at any age. We are now asking for your support to get Reflex Sympathetic Dystrophy Syndrome into a spotlight in the healthcare community and general population. As we have seen over the past few years great advances have been made in the diagnostic protocol and treatment of breast cancer through research and education programs. According to the National Cancer Society January, 2006 published statistics show that there are approximately 2.5 million women with a history of breast cancer still alive. Most of these individuals were cancer-free at the time of the study. The same advances can be made for the successful treatment of RSD if we can increase research and education.
Although there is not yet a cure for RSD, early diagnosis and treatment is the key to successful remission, and due to the lack of knowledge and research this is not being accomplished. Too little research and education is holding back patients and their families from living LIFE and puts unnecessary and at times impossible challenges before them in their daily lives. The undersigned are asking for help from our State Representatives in FAVOR of the legislative change to promote public awareness of the causes of RSD, the value of early detection and diagnosis, possible treatments for the syndrome, and to promote research through public and private sources, to accurately identify, diagnose and treat this syndrome.
We are now asking you to please consider sponsoring and supporting the Reflex Sympathetic Dystrophy Syndrome Education and Research Program Act.
In both the medical community and general society it is agreed that there are approximately 6 million people in the United States with RSD, however from recent medical data this is likely a large underestimate. The loss of production to the economy by people afflicted with this is substantial and it can happen to anyone, at any time, at any age. We are now asking for your support to get Reflex Sympathetic Dystrophy Syndrome into a spotlight in the healthcare community and general population. As we have seen over the past few years great advances have been made in the diagnostic protocol and treatment of breast cancer through research and education programs. According to the National Cancer Society January, 2006 published statistics show that there are approximately 2.5 million women with a history of breast cancer still alive. Most of these individuals were cancer-free at the time of the study. The same advances can be made for the successful treatment of RSD if we can increase research and education.
Although there is not yet a cure for RSD, early diagnosis and treatment is the key to successful remission, and due to the lack of knowledge and research this is not being accomplished. Too little research and education is holding back patients and their families from living LIFE and puts unnecessary and at times impossible challenges before them in their daily lives. The undersigned are asking for help from our State Representatives in FAVOR of the legislative change to promote public awareness of the causes of RSD, the value of early detection and diagnosis, possible treatments for the syndrome, and to promote research through public and private sources, to accurately identify, diagnose and treat this syndrome.
We are now asking you to please consider sponsoring and supporting the Reflex Sympathetic Dystrophy Syndrome Education and Research Program Act.
1472 Signatures
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Barby Ingle
- Comments
- Thank you for hearing our united voice!
- Zipcode
- 85140
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Ken Taylor
- Comments
- Thank you!
- Zipcode
- 85140
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Jim Ingle
- Comments
- Thank you for your support
- Zipcode
- 23834
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Karol Patras
- Comments
- please help those of us suffering with this horrible disease
- Zipcode
- 35040
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Roberta Key
- Zipcode
- 39577
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Chris Shellenberger
- Zipcode
- 18042
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Ann Congden
- Comments
- I have suffered from RSD for almost 2 years. I had never heard of this disease until diagonised. So much about RSD is unknown and doctors, patients, family and the general public need to be educated on this devastating disease. Research is needed for a cure!
- Zipcode
- 13480
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Lillian M Wilde
- Comments
- I'm 17 Yrs Full Body Afflicted
- Zipcode
- 23004
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Lisa Mintz
- Zipcode
- 28401
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Rhia Steele
- Zipcode
- 75119
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carol psaute
- Zipcode
- 73533
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brenda mcdonald
- Comments
- Making awareness of RSD/CRPS will benefit many from employers, to health care workers to patients. Until you know someone or are that someone you can not even imagine the obstacles that we are faced with on a daily basis.
- Zipcode
- 50327
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Shari M. Utter
- Zipcode
- 23954
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Tammy Bales
- Comments
- Please consider passing this Act as like others who have this I did not know what it was either and felt the Dr who told me knew little as well.
- Zipcode
- 32725
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Karmon J Primas-Hailey
- Comments
- Thank You!
- Zipcode
- 22025
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Rebecca Hoey
- Comments
- My daughter(just turned 11) has been suffering horribly every day from RSD for over 2 years-please help with awareness, education, & research!!
- Zipcode
- 11961
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Tim Ingle
- Zipcode
- 22042
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Georgia Fotopoulos
- Zipcode
- 21224
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liz scribe
- Comments
- RSD is a horrible life altering disease...Please pass this act and give our children hope for the future.
- Zipcode
- 23068
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Mark
- Zipcode
- 07728
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kelly
- Zipcode
- 49037
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Todd halliwell
- Comments
- I have been suffering too long w/ this disease ... Please help find a cure.
- Zipcode
- 02893
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Kim Robinson
- Comments
- Chronic pain is a nightmare. If you spent 24 hours in my shoes this would be approved immediately!
- Zipcode
- 28613
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Debbie Pennay
- Comments
- PLEASE PLEASE PLEASE HELP US!!
- Zipcode
- 13865
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Helen Freemyer
- Comments
- We need to find a cure!
- Zipcode
- 80113
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Pattie Rosario
- Zipcode
- 92346
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Diane Jones
- Zipcode
- 06779
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Gary Hill- State of Calif, advocate of RSD/CRPS
- Zipcode
- 95843
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Kathy Robinson
- Comments
- We need more medical & awareness in all states People are suffering with this going with no proper health care & some go with no meds. and Living on such fixed incomes that some go with Little Food & not enouh money to pay bills. Bed ridden people with no Help & The list goes on & on
- Zipcode
- 40258
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Colleen Ann Westra
- Comments
- I have had RSD for over 7 years after a car accident, and have been unable to return to work as an RN since 2004
- Zipcode
- 49004
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robyn leia
- Comments
- I've had RSD for 11 yrs...destroyed my life! Please fund research to help us!
- Zipcode
- t7v 1s3
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Cynthia Stor
- Comments
- If you experienced the pain I have 24/7 there is no way you would not sign to pass this important Research Program Act.
- Zipcode
- 28906
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Maribeth LeValley
- Zipcode
- 95409
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Dominick V. Spatafora
- Comments
- Director of Advocacy and Professional Relations, Pfizer
- Zipcode
- 85255
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Marbeth Levy
- Comments
- Thank you for doing this
- Zipcode
- 22124
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ada warren
- Zipcode
- 81226
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Katherine Everett-Ferry
- Zipcode
- 19047
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AUSTIN WOOD
- Zipcode
- 17566
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kelly bontrager
- Comments
- We need help NOW! I'm not alone when I say this, but there our millions of us that nedd help ASAP! I also have full body CRPS with no Dr to treat me due to lack of education! please help!
- Zipcode
- 49037
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Dominick Spatafora
- Zipcode
- 85255
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Jerry
- Comments
- On Aug 17th, I will celebrate 4 long hard self changing yearsof the Demon Monster (RSD/CRPS). This disease tries to steal your life, family, friends.I am not running from you anymore RSD, I am going to celebrate you and make this anniversary from you party time. I am having spaghetti, salad, garlic bread, glassof wine and for desert, red velvet cake with ice cream. PARTY TIME.I spit in the face of (RSD/CRPS)!!!!3 minutes ago clear
- Zipcode
- 71104
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Larry N Bontrager
- Zipcode
- 49002
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Jacqueline Fostar
- Zipcode
- 95608
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Jacqueline Murray
- Zipcode
- 91105
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Trudy Thomas
- Zipcode
- 89032
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Shari Caudill
- Comments
- I've had this disease for 16 years and there's no real treatment.
- Zipcode
- 45629
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Yazmin M Rodriguez
- Comments
- Puerto Rico Challenge RSD/CRPS as a team look for us in Facebook My daughter was affected in her school by the condition it was hard for teachers and student understand her pain was invisible
- Zipcode
- 00745
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Marlene Stamper
- Comments
- please keep us from suffering needlessly!
- Zipcode
- 41101
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trudy apicella
- Zipcode
- 06779
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Linda Frye
- Zipcode
- 15701
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1472
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